Letter Sounds

As you know from a previous post, “Mom…Mom….Mama….Mommy,” we waited a long time for ‘J’ to say Mommy and Daddy.

From the time he was 1.5, he was obsessed with letters. Before he was 2, he could match puzzle letters to his name spelled out on paper. We had an app on our phones that was easy for him to tap to go from letter to letter and his favorite show (once he graduated from Mickey Mouse Clubhouse) was Super Why. It’s still one of his favorite shows. He always understood everything we were saying, just needed some work on expressing himself.

After I made an appointment for a speech evaluation two years ago, I did what any mom does. I went straight to Google and YouTube so I would know what to expect.

A song we had been familiar with was “Letter Sounds” by Barbara Milne. As I was searching through YouTube I came across a Speech Therapist, Alina Mihai. She had recorded a session with a child where she went through this same song while showing pictures for each letter. ‘J’ was instantly hooked. He knew the song and would slowly start to react to the video. I thought that maybe it would lead to some words, but we had to wait a little longer for that. She also had another video posted “Two Word Phrases: Lego Play.” The title explains it all and ‘J’ loved watching this one. Over time and being involved in our own speech therapy, we didn’t watch the videos as much but would still sing the song often.

‘Baby J’ is 1.5 now and has a good vocabulary forming. One day I put the video on again for them both to watch. ‘Baby J’ was hooked and would repeat what she could. ‘J’ has now memorized the video and can repeat it word for word without even watching it.

It’s times like these when it’s amazing to see how far he’s come. In the Fall it will be two years since we started Speech Therapy. Although it seems like yesterday, it’s amazing that we went two and a half years without hearing any words from Mr. Chatterbox.

Milestones

First off, I promised a blog everyday this week and I failed yesterday. But it was for a good reason!

‘J’ turned 4 on June 5th. 4! How did that happen? Remember when High School felt like forever? And college?! And yet you start on an awesome adventure of being a parent and 4 years go by in a blink.

In 4 years he has grown and changed so much. I’ve been lucky enough to witness every milestone: rolling, first steps, the long awaited first words and so much more! Toddler days are over and the personality he’s always had continues to flourish. He’s loving, sweet and funny, strong and smart, cute and full of energy. I see him interact with his friends and have flash forwards to years from now catching a glimpse of who he might be. I want the best for him and hope that when life lets him down, he can use his new strength to navigate out of it and turn it into something positive. His smile and laugh are contagious and I never want to see that fade.

Yesterday, ‘J’ had his closing ceremonies for his first year of school. Much like the first day of school can be more emotional for the parents, I think the same can be said for the last day. After talking with some of the other moms, I’m thankful to know I wasn’t the only one not accepting this change. This has been our routine for the past 9 months. We hit the jackpot with his teachers and the kids in his class. We’re going back to the same school in September but with different teachers and kids. I know it won’t always be as good as it was this year which only adds to not wanting to let go. I’m so thankful he found a safe and happy place in his classroom. He knew if he felt overwhelmed, he could go to his teachers for comfort. I heard about a day he was randomly crying and saying he missed me. His teachers said his friends gathered around him to make him feel better. Hearing that makes my heart explode. Of course I want to be there to scoop him up and make the tears stop. But I love that if I can’t be there, he found comfort in his friends.

I’m so proud of how he did in school this year. We continue to navigate through his speech and sensory difficulties. He works so hard everyday between school and his therapies. He’s insanely smart and blows us away daily. At the same time, he’s only 4 and sees everything as a way to play. And isn’t that the best way to learn?

It’s hard to see time go by so fast. I want my babies to stay babies forever, but I also want them to grow to be healthy, strong, independent adults. This is nothing compared to what I’ll be up against in the coming years. I look forward to all of it!

In the meantime, I’ll try to hide my lack of enjoyment when it comes to change so he’s just as excited for school in September as he was this year (hopefully).

When the Student Becomes the Teacher

‘J’ has been receiving speech therapy for 1 year and 6 months. Prior to speech therapy, he was a big grunter. Grunts took the place of words. To sit here today and see how far he has come amazes me.

Now that his sister has been starting to talk, he has taken on the role of trying to teach her new words. He says them slowly, points to his mouth and tries to get her to repeat them. It’s beyond adorable. Of course it typically happens when my camera is not easily accessible.

Why I haven’t put GoPros on them by now, I have no idea.

We are so thankful for his speech therapist. We hit the jackpot with someone that ‘J’ took to, feels comfortable with and talks about even when she’s not around. He has learned so much from her, which he is now using in his teaching style with his sister.

He’s still working on perfecting words and his sentence structure, but he gets better everyday. Soon enough we will have not one but two chatterboxes in the house.

Hear Ye Hear Ye

About 7 years ago, my brother and I started a blog about our love for Disney. Although we’ve never kept up with it too much, it kept pulling us back.

In the last year, we’ve worked on our social media presence and in recent months we started hosting Theme Park Thursdays on The Improviser’s Guide Podcast.

But why am I talking about Disney? Well, The Improviser’s Guide Podcast has a new episode 4 days a week with a new topic for each day. This week I was lucky enough to be featured on “IT’S [Talk] TUESDAY” as a guest to discuss this blog!

I’ve mentioned before that I appreciate articles, blogs and groups I’ve come across that have helped me navigate speech delays and sensory processing difficulties. If reading this blog does that for someone else, even if it’s just providing some comfort that the reader is not alone, than I will consider that a success.

I really appreciated being able to speak on the podcast and educate others who may not know much about these topics, or might be starting on a similar journey.

The Improviser’s Guide Podcast is available via Apple, Stitcher, Castbox and Libsyn. Click here for quicker access to the Just My MomSense episode.

And now for cross promotion. If you’re a Disney lover like me, check out dillosdiz.com or @dillosdiz on Twitter and Instagram!

Transitioning Back to a Routine

Last week was spring break here in NY which meant no school, no speech therapy and no occupational therapy. The week started pretty gloomy weather wise and we had 3 indoor days. On Thursday we decided to take a trip to Pittsburgh to check out the Mr. Rogers exhibit. If you haven’t been, I definitely recommend it! The Heinz History Center, where the exhibit is located, is great for kids in addition to seeing all the cool Mr. Rogers memorabilia.  More on the trip in another blog.

When I was working and would take time off for a trip, I would always make sure there was a buffer day when I returned. A day to come home, chill out, do some laundry, etc. before jumping back into work. Probably seems silly considering I was just on a vacation, but I never wanted to go right back into the normal daily routine.

‘J’ loves routine. If he doesn’t know the agenda for the day or if curveballs are thrown in, he’s not a happy camper. Of course after a week away from school and services, while doing a small trip away, there would be a readjustment period. It’s Wednesday and I think we’re still in it.

He’s had periods of acting out, two meltdowns during school yesterday and hesitation with OT and Speech today. I’m pretty sure he’s had a small cold the last few days as well, which I’m sure isn’t helping. But it all makes sense and coming from someone who needed a buffer day after a cruise, how could I not understand?

I’m hoping over the next few days the ups and downs return to more ups and less downs. I hate seeing him upset and affected by his surroundings. I know he does too.

 

Breaks from School, Snow Storms, the Flu, Oh My!

‘J’ started Occupational Therapy (OT) in the beginning of February. However, due to winter break, our late season snow storms and his parents having the flu, there hasn’t been a great routine when it comes to OT.

We’re only a couple of weeks away from Spring Break. Hopefully after that we can get into a good groove. I’m happy he likes going. He’s comfortable with his therapist and has fun while he’s there. It makes it so much easier!

Last Monday we had our meeting with the School Board. He’s been approved for Speech and OT for the September-June ’18/’19 school year. I’m happy he’ll be continuing. The more help he can get at a young age, for his day to day experiences, the better!

Since the decision is made by the school district and is based on the school calendar, he will not have services over the summer. I go back and forth with how I feel about that decision. On one hand, I think it might be good for him to have a break and practice all the skills he’s learned. On the other hand, I don’t want him to regress from the progress he’s made. Starting OT later in the year, there may be a chance we could continue over the summer and luckily we’re close with our speech therapist so I’m sure we will see her in an unofficial capacity. I’m sure he would miss her too much if we didn’t!

Winter seems to be never ending this year. I can’t wait to get outside and play for the summer!

Squishy Fidgets

We’ve all heard of fidget spinners. It went from being a helpful aid for those with sensory disorders, autism and ADHD, to a hot holiday item that everyone wanted.

I never thought much of it, but in recent months I started to wonder if a fidget would be good for ‘J.’ I wasn’t sure where to start and didn’t feel like a spinner was the right answer for him.

I did some research here and there but never moved forward with the idea. About two weeks ago, ‘J’ started watching TV, reading books, etc. and I noticed his hands would be in his mouth pretty often. This was new and something I was keeping an eye on. I also noticed as he was playing play dough or some other toys he would be testing how it felt on his face. I wasn’t sure if he was requiring more sensory input or if something was bothering him. After talking with him and watching him more, I felt like at times he just needed to do something with his hands. I mentioned it to his Occupational Therapist on Monday and she suggested a fidget. During his session, she gave him a squishy fidget to play with. His hands never went in his mouth and he was excited to play with it. She said img_2017it’s something we could try and told me I could find them on Amazon. Easy enough! Amazon and I have a great relationship.

Right after OT, he has speech. I mentioned it to his speech therapist and she had a smaller fidget with her. She gave it to him to play with and mentioned it might help keep him still. Sometimes he gets…for lack of a better word…fidgety during his session. She also let him know that anytime he wants it, all he has to do is ask.

Now we our very own squishy fidget dinosaur (pictured here as he roars) and a few others to try out. I’m hoping this can be used for calming purposes when needed, gives him the sensory input he sometimes requires and of course for fun!

Click here to purchase the same squishy fidget toy for your family! 

It’s the Final Countdown

What a week it’s been!

Baby J’s sickness developed into a virus with a new symptom everyday! A few trips to the doctor and a week later, she’s finally feeling better!

Big J had a snow day from school on Tuesday and was back in the grind on Thursday. I’m so happy he loves going to school…I’m sure one day he won’t!

It’s the Final Countdown to OT! We start on Monday! With everything going on lately, Itenor haven’t even had time to think about it too much. I definitely want to write down some questions and get him ready for the addition to his routine. Due to the timing availability of OT, we have to rearrange our Speech Therapy schedule. With J so comfortable with his awesome speech therapist, it’s easy to make adjustments without it affecting him.

I need to catch up on my reading of The Out-of-Sync Child and gear up for Monday! I’ll be sure to keep you all in the loop with our new journey!

How Do We Start The Conversation?

Some people in our life, including our closest friends and family, are just learning about J’s Speech Therapy and soon to be Occupational Therapy through this blog.

We weren’t trying to hide anything, weren’t embarrassed, not worried about being judged and we weren’t too overwhelmed to talk about it. It’s hard to put into words why this is news to most, but I’ll try.

J is a healthy, happy boy. He loves cars, puzzles, anything letter related, going to the park, Disney (it’s in his DNA), his family and his friends. I don’t feel anything is “wrong” with him. Thankfully, he’s not sick. He just has to work a little harder at things than some other kids do. And also not as hard as some other kids do.

So this raises the question-how do we go about starting the conversation? To make a big announcement may seem like it’s a bigger deal than it is, in the sense that something is “wrong.” By not saying anything, it may seem like we are holding back or that more is going on.

I don’t have an answer and would love to hear from other parents! There’s no shame or embarrassment in kids needing some extra help along the way and it’s important to talk about.

Feel free to comment below, Follow me on Twitter or if you know me in real life-reach out personally! I would love to hear from all of you!

Mom…Mom…Mama…Mommy?!

Most parents can definitely relate to this clip:

I waited a really long time to be called any version of “mom.”

J started speech therapy at 2 years and 5 months old. In that time, I heard some babbles of mamamama early on, but never in context. There were times I’d wonder if one day he’d wake up and just say it. He spoke in grunts, used lots of gestures and we understood everything he needed and wanted. 95% of the time, I never cared that he wasn’t calling me mommy. But every once in awhile, the thought that he hadn’t called us mama and dada would creep in and we’d wonder when it would come.

After a month or two of therapy, it happened. His speech therapist asked who I was and he said “mom.” It was awesome. I stayed “mom” for months. I figured he was skipping over the cute baby way of saying mommy. Maybe were going straight into teenage years where he was too cool for mommy and went right to mom. A few more months passed, we became mommy and daddy and it has stuck.

I remember us all being in the car one day and I said “we’ve waited a long time for him to talk but you know once he does, he’s not going to stop.” I knew the day would come that we’d stop wondering when the words were coming and be experience our very own version of the clip above. It did and despite how often I hear my name most days..which is a lot…I love it.

Sometimes it’s hard to remember these milestones as time passes because he’s come so far. In one way it seems like just yesterday he was grunting because he wanted something to eat. Now he asks his sister how her snoozie was when she wakes up. He says Thank You to someone that opens a door for him. And he says “hey mommy?” and “hey daddy?” at least 100 times a day!

*The YouTube Clip was posted by Erudius