It’s a Beautiful Day in the Neighborhood

On April 21, 2018 By justmymomsenseIn Uncategorized1 Comment

“When I was a boy and I would see scary things in the news, my mother would say to me, ‘Look for the helpers. You will always find people who are helping.’”

“Love isn’t a state of perfect caring. It is an active noun like struggle. To love someone is to strive to accept that person exactly the way he or she is, right here and now.”

“Often when you think you’re at the end of something, you’re at the beginning of something else.”

“Forgiveness is a strange thing. It can sometimes be easier to forgive our enemies than our friends. It can be hardest of all to forgive people we love. Like all of life’s important coping skills, the ability to forgive and the capacity to let go of resentments most likely take root very early in our lives.”

“There are three ways to ultimate success: The first way is to be kind. The second way is to be kind. The third way is to be kind.”

“You’ve made this day a special day, by just your being you. There’s no person in the whole world like you; and I like you just the way you are.”

These are just a few of the many amazing quotes are by the one and only Fred Rogers.

Two weeks ago, we decided to take a trip to Pittsburgh during spring break. Not the first place that comes to most people’s mind when you think of spring break, but we wanted to check out the Mister Rogers Exhibit at the Heinz History Center.

Admittedly, I did not grow up watching Mister Rogers’ Neighborhood. Of course I had seen it, but my brother had been a fan when he was younger and I didn’t take to it in the same way. As I got older and learned more about him, watched interviews and read articles, I came to appreciate his message. Now that I’m a mom, it speaks to me even more.

With his 50th anniversary last month, PBS started showing some old episodes. I wasn’t sure how the kids would react to it since it’s older, slower and not all the sparkle that is everywhere on children’s programming now. Once I put it on, both ‘J’s,’ ages 3 and 1, were hooked. Mister Rogers never needed the sparkle, and it still holds true.

Although the exhibit isn’t big, it doesn’t have to be. As soon as you walk in, you’re transported to the land of make believe. You can see King Friday’s castle, Henrietta’s Treehouse, the trolley and of course a few puppet friends. There are so many little details from Mister Rogers’ shoes to the trolley. They are playing clips from the show and have two booklets you can read through about Mister Rogers’ life and the show.

There weren’t many people there on the Friday that we visited, but you almost felt the need to talk quietly. Everyone was there to take it all in and appreciate the artifacts from the show. His fanbase and the people he has affected spans 50 years.

Pittsburgh is a 6-7 hour drive for us and we took 48 hours out of our spring break to make the trip. As a bonus, the Heinz History Center also has a great kids’ area with building blocks, air tunnels, coloring and more! Of course there are many great exhibits for adults as well. If you can get there to visit, I highly recommend you do. You won’t regret it!

And now Mister Rogers defending PBS to the US Senate Subcommittee of Communications. A clip that shows the power of Mister Rogers perfectly:

Wiggling Our Way Through Meals

On April 18, 2018April 18, 2018 By justmymomsenseIn Uncategorized3 Comments

For the last few weeks, ‘J’ has been getting up mid-meal to jump, spin or run. He’s not upset when he’s doing it, not having a tantrum, it’s almost as if he just needs to do it.

‘J’ loves jumping on the floor, trampoline or his bed. He loves climbing anywhere he can. The fact that he’s a fan of this in general, it’s not surprising that once he’s sitting and eating for awhile, he needs to change things up.

He’s always been good about sitting at the table to eat. I’m torn in the sense that if he feels like that’s what he needs at that time because of how he’s feeling, I don’t want to stop him. At the same time, it’s not the best habit to teach, especially if he carries it over to a restaurant (knock on wood-that hasn’t happened yet).

I mentioned it to our OT and she suggested a wiggle seat. When I was talking with our speech therapist about it, she mentioned she had one we could try out. The last few days have gone well and he seems to like it. I don’t see him jumping or spinning as much. Who knew that a tiny little seat can do so much?

But what is it actually doing? The following was taken from sensorysolutions.co

The inflated chair has a slight texture on the surface, which already works to provide a certain amount of sensory stimulation. The angle and shape of the chair causes the child to engage their core section and balance themselves on top while sitting.

This stimulation actually sends signals to the brain to allow their minds to focus easier. What this means is that your child’s subconscious focusing on their posture and balance while sitting on the wiggle chair directly influences how their mind focuses. This makes the chair perfect for classroom settings.

The seat can help calm and organize the body. Since it’s working so far, I’ll keep it going. Stay tuned for updates!

Listen to Becky, from Sensory Spectacle talk about why someone with Sensory Processing difficulties may bounce on their bed:

A Hairy Situation

On April 17, 2018April 17, 2018 By justmymomsenseIn Uncategorized6 Comments

‘J’ had his first haircut on the day he turned 1. We were in Disney World and went to the Barber Shop on Main Street. It was so much fun and he did great! He may have been ok with a haircut or two after that one but since that timeframe, it has been a struggle.

As time has gone on, it’s not just a struggle to cut his hair. Washing his hair is usually being done as he is screaming or crying. Brushing his hair is a big battle in the morning. Sometimes I try wetting the brush a bit since he definitely has a big case of bed head every morning. I’m trying to give up wetting the brush since he hates feeling the water and only makes him hate the experience more.

It’s tough when we’re getting ready for school and he’s running away screaming not wanting his hair brushed. Or if I was able to brush it, he then has to rub his head in the couch, bed or on his hand while screaming which puts us back to square one.

This is an ongoing process to see what may help him get through these activities. It’s another example of something most people take for granted, but for him, it’s an extra sensitive situation. Like most things in parenthood, it’s trial and error until we find the key to what works.

Below are two videos from Sensory Spectacle. The first talks about why someone with SPD may not like brushing their hair, the second discusses why they may not like washing their hair and the last is all about haircuts.

Transitioning Back to a Routine

On April 11, 2018 By justmymomsenseIn UncategorizedLeave a comment

Last week was spring break here in NY which meant no school, no speech therapy and no occupational therapy. The week started pretty gloomy weather wise and we had 3 indoor days. On Thursday we decided to take a trip to Pittsburgh to check out the Mr. Rogers exhibit. If you haven’t been, I definitely recommend it! The Heinz History Center, where the exhibit is located, is great for kids in addition to seeing all the cool Mr. Rogers memorabilia. More on the trip in another blog.

When I was working and would take time off for a trip, I would always make sure there was a buffer day when I returned. A day to come home, chill out, do some laundry, etc. before jumping back into work. Probably seems silly considering I was just on a vacation, but I never wanted to go right back into the normal daily routine.

‘J’ loves routine. If he doesn’t know the agenda for the day or if curveballs are thrown in, he’s not a happy camper. Of course after a week away from school and services, while doing a small trip away, there would be a readjustment period. It’s Wednesday and I think we’re still in it.

He’s had periods of acting out, two meltdowns during school yesterday and hesitation with OT and Speech today. I’m pretty sure he’s had a small cold the last few days as well, which I’m sure isn’t helping. But it all makes sense and coming from someone who needed a buffer day after a cruise, how could I not understand?

I’m hoping over the next few days the ups and downs return to more ups and less downs. I hate seeing him upset and affected by his surroundings. I know he does too.

Indoor Activities

On April 9, 2018April 9, 2018 By justmymomsenseIn Uncategorized4 Comments

As a kid, I was not a fan of arts and crafts! Becoming a stay at home mom, I’ve definitely gone outside my comfort zone and tried new crafts and activities here and there. I’m thankful for Instagram and Pinterest! If I’m not doing exactly what I see in posts, then it will get me to think of a similar idea tailored to both ‘J’s.’

Last week was our Spring break and we kicked it off with six inches of snow on the first day and a rainy day the next! To say I’m over winter and ready to be outside with some nice weather would be an understatement. The kids love going for walks, playing at the playground or just hanging in the backyard. I’m itching to do more of that! Needless to say I’ve been trying out new activities with help from social media.

LEGO Matching

Like most kids (and adults), ‘J’ loves LEGOs! When I saw this all over Pinterest, I knew we had to try! I printed up some LEGO tower patterns and got out the Duplos.

*Side note: one day I gave ‘J’ an online IQ test just for fun and he had to match patterns. He was so into it, he asked to “play” it again the next day, so I knew he would be into this version with LEGOs!

This activity is great for gross motor skills, learning patterns, practicing colors and following direction.

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Moon Sand

An indoor sandbox? What kid would say no to that?!

I was a little hesitant to try this one since I wasn’t sure if the ‘Js’ could keep it contained. But I got out a big sheet and took a chance. I’m so happy I did!

There are different recipes out there for making moon sand. Due to the supplies I had around my house, I went with 5 cups of flour and 1 cup of vegetable oil. Once I started mixing, I probably added a little bit more of both. I would definitely recommend the 5:1 ratio as a good starting point. The sand shouldn’t be too powdery but not too thick either.

I mixed it in a disposable cooking pan, threw in some toys and sent them on their way! The pictures are from the beginning with only a few items. By the end there were plenty of figures, cars, cups, spoons, etc. all enjoying the indoor beach day. This activity kept my 3 year old occupied for about an hour straight. Less for my 1 year old, but that’s to be expected.

Cheerio Tower

This was something I saw and threw together based on the few materials I had.

Even though I’ve seen it bigger while using raw spaghetti, why not try smaller play-doh shapes and some toothpicks? It’s all about improvising! Another great activity for gross motor skills, as well as counting (and of course a built in snack).

Play-Doh

Not a DIY activity, but a gift from the Easter Bunny instead. Great timing for a snowy/rainy spring break!

I’ve mentioned before that ‘J’ is obsessed with letters, but play-doh is high on his list of favorite things to do. When I saw…um I mean the Easter Bunny couldn’t resist leaving it for him!

An all in one box where you can practice letters, make faces while discussing emotions, match up letters to the right animal or write with a special play-doh pen. A bonus: this activity is great for practicing speech too!

The bottom line is, if I can board the DIY activity train, so can you!

Sensory Friendly Spaces

On April 4, 2018April 4, 2018 By justmymomsenseIn UncategorizedLeave a comment

I have recently seen an increase in public venues offering Sensory Friendly days or a specific space at that venue. For example, in January 2017, it was announced that the Pro Bowl at Camping World Stadium in Orlando would offer noise cancelling headphones, squeeze toys and a safe room as an option for those with sensory difficulties.

On April 15th, the Dallas Zoo will hold a Sensory Friendly Day and on the first Sunday of every month Chuck E. Cheese will be open from 9AM-11AM for Sensory Sensitive Sundays which will include reduced lighting and noise.

The St. Louis Aquarium will be the first to be built with Sensory Inclusion in mind. They will offer quiet spaces and they understand that aquariums tend to be very overwhelming for those with sensory issues. The aquarium opens during the Summer of 2019. Click here for more information.

Certain AMC Theater locations offer Sensory Friendly times for moviegoers. Taken from the AMC website:

AMC is proud to partner with the Autism Society to offer unique movie showings where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing! Our Sensory Friendly Film program is available on the second and fourth Saturday (family-friendly) and Tuesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes, and don’t forget to share your family fun with #AMCSensoryFriendly.

These are just a few examples of sensory friendly spaces popping up. The more education companies and venues have, the more inclusive they can become.

Click here for information on Sensory Friendly Day at the Dallas Zoo

Click here for information on Sensory Sensitive Sundays at Chuck E. Cheese

Click here for information on The St. Louis Aquarium

Click here for the AMC Sensory Friendly Film Program

Sensory Processing Disorder and Autism

On April 3, 2018 By justmymomsenseIn Uncategorized2 Comments

April is Autism Awareness Month and yesterday, April 2, was Autism Awareness Day. Although ‘J’ is not autistic and Sensory Processing Disorder is not Autism, many with autism also have sensory processing difficulties.

The following was taken from the Star Institute for Sensory Processing Disorder:

Children whose Sensory Processing Disorder conforms to the under-responsivity subtype typically require a great deal of stimulation in order to become alert and active, a behavior often seen in children with autistic spectrum disorders. Meanwhile, other children with ASD have symptoms more similar to the over-responsive subtype of SPD. Because Autism and SPD both have over-responding and under-responding categories, Autims and SPD are sometimes mistaken for one another.

The relationship between SPD and Autism is an area of great interest to scientists and families living with the condition. Studies by the STAR Institute suggest that at least three-quarters of children with autistic spectrum disorders have significant symptoms of Sensory Processing Disorder, and probably more depending on how significant symptoms are defined.

However, the reverse is not true. Most children with SPD do not have an autistic spectrum disorder! Our research suggests that the two conditions are distinct disorders just as SPD and ADHD are different disorders.

Appropriate intervention relies upon accurate diagnosis. Pursuing an evaluation for SPD by a qualified occupational therapist with sensory integration training facilitates diagnosis that distinguishes autistic spectrum issues from sensory issues. This distinction increases the likelihood that your child will receive the appropriate treatment for his or her neurological conditions.

With further research into the relationship of SPD and autistic spectrum disorders, the STAR Institute hopes to facilitate better more appropriate intervention for all children who have either – or both – SPD and Autism.

In The Out-of-Sync Child, Carol Stock Kranowitz writes “One of the major deficits of the child is difficulty processing sensory information. SPD underlies the child’s problems with coordination and balance, visual discrimination, and the ability to comprehend gestures, facial expressions, and social cues. For children with NLD, sensory integration therapy very beneficial.”

There are so many great resources available to those affected by autism. Click here to learn more from Autism Speaks.

It’s Too Loud!

On March 30, 2018 By justmymomsenseIn Uncategorized1 Comment

A big trigger for ‘J’ are sounds. He absolutely hates when our dog (or my parents’ dog) does her alert bark. If someone rings the doorbell, of course our dog is going to respond and let us know. Although she feels like she is protecting us, ‘J’ sees it as something that is being done to him.

One of my first red flags was seeing ‘J’ react to his sister or cousin crying. At first I thought he was just being empathetic (and I’m sure there is an aspect of that) but over time I felt like there was more behind it. It’s so hard to watch him react to their crying, especially if we’re in a car or somewhere else where he can’t remove himself from the situation. It completely overwhelms him and he cries and screams to express the hurt it’s causing him.

I think because he has started to realize that things that are too loud are overwhelming, he describes certain situations as “too loud” or “too big.” At this point we are try to work with him to understand what can soothe him in these situations. Sometimes it’s playing a Super Why game on our phones and other times it’s having a snack. Unfortunately sometimes we just have to wait it out, which is the hardest one of all.

In The Out-Of-Sync Child, Carol Stock Kranowitz discusses determining if a child has an issue with each sense. For the auditory sense, she details overrresponsitivity, underresponsitivty and sensory craving. Although I can relate ‘J’ to a few different aspects, one line stuck out for me: “If he can’t get away from the hubbub, he may raise his own voice, hollering, La-La-La-La! to counteract noise, rather like fighting fire with fire.” If ‘J’ doesn’t respond by crying to a sound that is bothering him, he starts screaming or talking louder to try to deal with the overwhelming sound.

Although these are my experiences, Sensory Spectacle has a video on their YouTube page that explains why some people may cry at sudden noises:

Mood Swings

On March 29, 2018March 29, 2018 By justmymomsenseIn UncategorizedLeave a comment

Everyone has mood swings. Personally, if I don’t get enough sleep at night, I’m dragging during the day. I may not have as much patience, not get as much done or may just be out of it. If I haven’t eaten in awhile, I may be cranky or lightheaded. Some days things seem off and you’re just having a day.

Kids are affected in the same ways!

Now add in sensory difficulties. It’s the end of a day, you’re tired and hungry as you sit at a restaurant for dinner. Anyone may feel a bit edgy. But for someone with sensory issues, this restaurant may feel so overwhelming. If someone already feels like sounds are too loud, this may be even worse in this setting.

Although specific instances like being tired or hungry do not cause sensory issues, they definitely aid in triggering them. I know I see it for ‘J.’ I’ve seen changes in weather affect him. I’m sure that sounds weird, but it’s true. Other times its tougher to pinpoint if there is an external factor like hunger or the weather amplifying his triggers.

This post is just me thinking out loud. I am going to check out The Out-of-Sync Child and other resources to read more about external factors. If any readers can relate or would like to share their experiences-please do!

Sensory Spectacle Resources

On March 26, 2018 By justmymomsenseIn Uncategorized1 Comment

I am so thankful for Becky Lyddon, of Sensory Spectacle, for taking the time out of her busy schedule to be a guest blogger this weekend.

Sensory Spectacle is working to bring awareness to the Sensory Processing Difficulties community. Although based in the UK, they are providing information that spreads throughout the world.

If you missed this weekend’s 3 Part series from Becky, please click below for links:

Supporting a Sensory Lifestyle for People with SPD Part 1

Supporting a Sensory Lifestyle for People with SPD Part 2

Supporting a Sensory Lifestyle for People with SPD Part 3

Make sure to check out the Sensory Spectacle website and shop for more resources. Their presence on YouTube is so valuable for educating the public about sensory processing. I am thankful for having found the videos and being able to share them with family and friends. Click on the links below to follow Sensory Spectacle!