Tag: Sensory Processing

Transitioning Back to a Routine

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Last week was spring break here in NY which meant no school, no speech therapy and no occupational therapy. The week started pretty gloomy weather wise and we had 3 indoor days. On Thursday we decided to take a trip to Pittsburgh to check out the Mr. Rogers exhibit. If you haven’t been, I definitely recommend it! The Heinz History Center, where the exhibit is located, is great for kids in addition to seeing all the cool Mr. Rogers memorabilia.  More on the trip in another blog.

When I was working and would take time off for a trip, I would always make sure there was a buffer day when I returned. A day to come home, chill out, do some laundry, etc. before jumping back into work. Probably seems silly considering I was just on a vacation, but I never wanted to go right back into the normal daily routine.

‘J’ loves routine. If he doesn’t know the agenda for the day or if curveballs are thrown in, he’s not a happy camper. Of course after a week away from school and services, while doing a small trip away, there would be a readjustment period. It’s Wednesday and I think we’re still in it.

He’s had periods of acting out, two meltdowns during school yesterday and hesitation with OT and Speech today. I’m pretty sure he’s had a small cold the last few days as well, which I’m sure isn’t helping. But it all makes sense and coming from someone who needed a buffer day after a cruise, how could I not understand?

I’m hoping over the next few days the ups and downs return to more ups and less downs. I hate seeing him upset and affected by his surroundings. I know he does too.

 

Sensory Friendly Spaces

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I have recently seen an increase in public venues offering Sensory Friendly days or a specific space at that venue. For example, in January 2017, it was announced that the Pro Bowl at Camping World Stadium in Orlando would offer noise cancelling headphones, squeeze toys and a safe room as an option for those with sensory difficulties.

On April 15th, the Dallas Zoo will hold a Sensory Friendly Day and on the first Sunday of every month Chuck E. Cheese will be open from 9AM-11AM for Sensory Sensitive Sundays which will include reduced lighting and noise.

The St. Louis Aquarium will be the first to be built with Sensory Inclusion in mind. They will offer quiet spaces and they understand that aquariums tend to be very overwhelming for those with sensory issues. The aquarium opens during the Summer of 2019. Click here for more information.

Certain AMC Theater locations offer Sensory Friendly times for moviegoers. Taken from the AMC website:

AMC is proud to partner with the Autism Society to offer unique movie showings where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing! Our Sensory Friendly Film program is available on the second and fourth Saturday (family-friendly) and Tuesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes, and don’t forget to share your family fun with #AMCSensoryFriendly.

These are just a few examples of sensory friendly spaces popping up. The more education companies and venues have, the more inclusive they can become.

Click here for information on Sensory Friendly Day at the Dallas Zoo

Click here for information on Sensory Sensitive Sundays at Chuck E. Cheese

Click here for information on The St. Louis Aquarium

Click here for the AMC Sensory Friendly Film Program

It’s Too Loud!

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A big trigger for ‘J’ are sounds. He absolutely hates when our dog (or my parents’ dog) does her alert bark. If someone rings the doorbell, of course our dog is going to respond and let us know. Although she feels like she is protecting us, ‘J’ sees it as something that is being done to him.

One of my first red flags was seeing ‘J’ react to his sister or cousin crying. At first I thought he was just being empathetic (and I’m sure there is an aspect of that) but over time I felt like there was more behind it. It’s so hard to watch him react to their crying, especially if we’re in a car or somewhere else where he can’t remove himself from the situation. It completely overwhelms him and he cries and screams to express the hurt it’s causing him.

I think because he has started to realize that things that are too loud are overwhelming, he describes certain situations as “too loud” or “too big.” At this point we are try to work with him to understand what can soothe him in these situations. Sometimes it’s playing a Super Why game on our phones and other times it’s having a snack. Unfortunately sometimes we just have to wait it out, which is the hardest one of all.

In The Out-Of-Sync Child, Carol Stock Kranowitz discusses determining if a child has an issue with each sense. For the auditory sense, she details overrresponsitivity, underresponsitivty and sensory craving. Although I can relate ‘J’ to a few different aspects, one line stuck out for me: “If he can’t get away from the hubbub, he may raise his own voice, hollering, La-La-La-La! to counteract noise, rather like fighting fire with fire.” If ‘J’ doesn’t respond by crying to a sound that is bothering him, he starts screaming or talking louder to try to deal with the overwhelming sound.

Although these are my experiences, Sensory Spectacle has a video on their YouTube page that explains why some people may cry at sudden noises:

 

 

 

Mood Swings

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Everyone has mood swings. Personally, if I don’t get enough sleep at night, I’m dragging during the day. I may not have as much patience, not get as much done or may just be out of it. If I haven’t eaten in awhile, I may be cranky or lightheaded. Some days things seem off and you’re just having a day.

Kids are affected in the same ways!

Now add in sensory difficulties. It’s the end of a day, you’re tired and hungry as you sit at a restaurant for dinner. Anyone may feel a bit edgy. But for someone with sensory issues, this restaurant may feel so overwhelming. If someone already feels like sounds are too loud, this may be even worse in this setting.

Although specific instances like being tired or hungry do not cause sensory issues, they definitely aid in triggering them. I know I see it for ‘J.’ I’ve seen changes in weather affect him. I’m sure that sounds weird, but it’s true. Other times its tougher to pinpoint if there is an external factor like hunger or the weather amplifying his triggers.

This post is just me thinking out loud. I am going to check out The Out-of-Sync Child and other resources to read more about external factors. If any readers can relate or would like to share their experiences-please do!

 

Sensory Spectacle Resources

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I am so thankful for Becky Lyddon, of Sensory Spectacle, for taking the time out of her busy schedule to be a guest blogger this weekend.

Sensory Spectacle is working to bring awareness to the Sensory Processing Difficulties community. Although based in the UK, they are providing information that spreads throughout the world.

If you missed this weekend’s 3 Part series from Becky, please click below for links:

Supporting a Sensory Lifestyle for People with SPD Part 1

Supporting a Sensory Lifestyle for People with SPD Part 2

Supporting a Sensory Lifestyle for People with SPD Part 3

Make sure to check out the Sensory Spectacle website and shop for more resources. Their presence on YouTube is so valuable for educating the public about sensory processing. I am thankful for having found the videos and being able to share them with family and friends. Click on the links below to follow Sensory Spectacle!

Sensory Spectacle Website

Sensory Spectacle Shop

Access and subscribe to the Sensory Spectacle YouTube channel

Follow Sensory Spectacle on Twitter

Follow Sensory Spectacle on Instagram

I’ll wrap up the series with this one video answering the question:

Why Do We Need to Provide Sensory Support?

Supporting a Sensory Lifestyle for People with SPD | Part 3 of 3

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Tips for Supporting Someone with SPD

It is important you understand what someone’s over-riding sensory needs is. This will be the sensory system which they are mainly ‘seeking’ or ‘avoiding’ in their day-to- day lives. Once you can recognize this you can be prepared to support them in all settings.

I suggest that parents and professionals are prepared with a ‘sensory sack’. This bag will contain a selection of items that will support a range of sensory needs (don’t forget needs may fluctuate and vary):

  • noise cancelling headphones, either in the ear or over the ear
  • sunglasses
  • cap with a peak
  • something which smells of that person (old tshirt)
  • a soft fidget like a small cushion
  • a rough fidget like a brush
  • a fidget which you fiddle with
  • a weighted beanbag
  • electric toothbrush
  • a massaging cushion

Most children and adults with SPD are already regulating themselves so try and notice how they are doing that and offer other strategies too. You can learn more about understanding these characteristics with our ‘Homelife’ video series on YouTube. Subscribe and share the videos for FREE!

SPD is currently not able to be diagnosed in the UK in it’s own right, it is only recognized with an Autism diagnosis. SPD affects many other people with additional needs too though, so please bear this in mind. 

An Occupational Therapist who is Sensory Integration trained will be able to offer support and advice for anyone who has SPD. If you would like to help your setting become more aware of sensory needs then why not download our ‘What is SPD’ sheet from our website.

My First Sensory Bottle

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I’ve had my eye on sensory bottles for awhile now and finally got around to making one!

Sensory Bottles and Calm Down Jars are great ways for kids to learn and refocus their energy. Think back to liquid timers. They were all the rage at one point! This is the same idea. Not only can they be used for helping with speech (Ready, Set Go!), they can also be used to help calm a child that is feeling over excited by just turning the bottle back and forth.

Thanks to Pinterest, there are sooooooo many options. I plan to make more but with a letter obsessed child, I found the perfect place to start.

I followed instructions from therealisticmama.com. The only change I made was going with a plastic bottle (Core Organic Juice) instead of a VOSS bottle, since I was worried that ‘J’ would break it. I also used all the letters in ‘J’s’ name to make it a little more fun for him.

The pictures are from right after it was made which makes the bottle look a little more streaky. ‘J’ loves it and hopefully it can be used as a calming tool for him. I can’t wait to make some others!

Check out The Realistic Mama’s post about Calm Down Jars by clicking here!

OT and Sensory Processing

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This is another question I’m often asked whenever someone learns that J is going to Occupational Therapy (OT).

As I mentioned in a previous post, J was wiped out after his first session of OT and definitely a bit off during his second. I felt that he was more sensitive, being triggered more easily and not listening as well as he normally does. I posed the question in some of the SPD Groups I joined on FaceBook. As I assumed, this is all normal. Other parents had experienced the same with their child in the beginning stages of OT, and some even continued as time went on. One mom shared her concern over her son being sensitive after his OT sessions. She has a cousin that is also an Occupational Therapist and reached out to her to see if this was a typical reaction. Her cousin assured her that it was perfectly normal. She explained that it may be a delayed reaction from being in an environment that felt good and organized his body. When going back to regular life, it kind of kicks the sensory system out of whack. She recommended discussing strategies with his therapist for the transition. I will be taking this advice as well.

Ok, but what does OT actually do to help with sensory integration? The following was taken directly from the STAR Institute for Sensory Processing Disorder’s website:

Occupational therapy with a sensory integration approach typically takes place in a sensory-rich environment sometimes called the “OT gym.” During OT sessions, the therapist guides the child through fun activities that are subtly structured so the child is constantly challenged, but always successful.

The goal of Occupational Therapy is to foster appropriate responses to sensation in an active, meaningful, and fun way so the child is able to behave in a more functional manner. Over time, the appropriate responses generalize to the environment beyond the clinic including home, school, and the larger community. Effective occupational therapy thus enables children with SPD to take part in the normal activities of childhood, such as playing with friends, enjoying school, eating, dressing, and sleeping.  

We’re still in the beginning stages of OT. It will take a lot of work and I look forward to coming up with the right sensory diet for J. This will help prevent or help us better deal with triggers. Like I said before, hard work pays off!

Click here to learn more from the STAR Institute. 

Hard Work Pays Off

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J is 3 1/2 and the hardest working person I know.

This week was his first real sessions of OT. Last week he met his therapist, we talked and got him comfortable with his new surroundings, but the real work started this past Monday and Wednesday. He did great!

We weren’t sure how he would feel about going back into the gym with just his therapist while I waited in the waiting room. Even as I tried to prep him for it, he said he wanted me with him. That would have been fine as we knew there may need to be an adjustment period. That feeling didn’t last. As soon as he saw his therapist, he was so excited and walked back with her. Luckily, he wanted to do the same the second time around.

On Monday, he was wiped out after his session! He was doing a lot of work on his stomach while on the swing and I think he finally met his match as to what can tire him out. I also noticed when we got home, including after his nap, he seemed a little off. A little cranky. Acting out a bit. The change in routine, a change in people and location and a half hour of sensory input, it would be naive not to expect some personality changes. OT will definitely be a lot more work than speech. He’s going to be challenged in ways he won’t like while on his path in figuring out what will help him in the bigger picture.

If anyone it up for it, it’s him. He works so hard every single day and doesn’t even realize it. He pushes through, gets excited and succeeds. We can all take a lesson from him. Keep your head in the game and hard work will pay off!

Not Always a Happy Birthday

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Happy Birthday to YOU

Happy Birthday to YOU

Happy Birthday Dear (Insert your name)

Happy Birthday to YOU!

Now make a wish and blow out the candles!

birthday-cake

This is normally a joyous song! Family and friends get together and honor the birthday recipient.

For J, it is anything but joyous! Don’t get me wrong-he likes the song and can sing it. What he hates is to hear a group of people singing it.

A couple of years ago, we were at my Great Uncle’s 95th party. While everyone was singing and celebrating, J was screaming and crying. This was before I even knew of Sensory Processing.

This happens anytime a group sings Happy Birthday. Or when a group of people cheers their glasses. Or if too many people say YAY! It’s all too overwhelming for J.

Recently, it was my daughter’s 1st birthday. We had a lot of people at the house and although he wasn’t upset, J was definitely extra hyper. I think he was trying to process so many people in his house all at once. Before we were going to sing Happy Birthday and even though I would’ve loved to have him there, I told him what was about to happen and gave him the option to not be in the room if he wasn’t comfortable. He took grandpa downstairs to the playroom and we sang to his sister.

At the end of the song, J came back upstairs crying. While downstairs, he had gone into his playhouse, closed the door and the windows as if to hide out. My dad told me that by the end of the song he was crying. Once I got him calm, he said he wanted to blow out candles too. So I relit one for him, told him to make a wish and he blew out his own candle. Within a few minutes he was back to the party.

Situations like this isn’t just a 3 year old having a tantrum. And if this was the only thing he did that didn’t seem right, I might not think anything of it. But when you combine it with other triggers we’ve noticed, it’s hard to dispute that Sensory Processing seems to be the culprit.