Tag: Sensory Processing

A Karate Win

On By justmymomsenseIn Uncategorized1 Comment

Yesterday was big! ‘J’ knows it and we know it.

If you’ve read this blog before, you know that ‘J’ has had struggles going into school and going to swim lessons. He got through them both, but it was difficult. Before the pandemic, we had attempted a Ninja Warrior class at the same place we used to take mommy and me classes. I thought he would love it. He loves to run, jump and create obstacle courses, this would be perfect!

It wasn’t.

Although I would be able to watch him during the class, a counter separated us which was too much of a separation for ‘J.’ There are things that we have to force him to do that aren’t easy for him: school, going to the doctor, etc. This wasn’t something he HAD to do, so we didn’t go back.

With some time having passed, we decided to try again this past spring. This time, his sister was also old enough for the class and I thought having each other would help.

It didn’t.

His sister however loved it and we signed her up for Ninja Warrior class, as well as Gymnastics. He came with us to watch her a few times and never felt like he was missing out. A feeling I never want him to have. He was ok with his decision which made us ok with it too. In the meantime, we found a LEGO challenge class online and most recently a virtual drawing class. He was comfortable with this set up, especially after a year of virtual school.

Their two best friends recently decided to try classes at the same location. I mentioned it to ‘J’ and asked if would want to try again, he said no and was still ok not being there. Then his sister, and two friends tried the Karate class. This was something we had offered to him before and something we knew he would like. He came with me as we watched the trial class. As he sat there, he kept saying “I wish I could do that too.” I said “You can! I’m sure they’d even let you try this class if you wanted to.” He said he wouldn’t be able to because he would cry. This was the first class where he felt like he was missing out on something. We talked about it as the week went on. I suggested we email the teachers to see if we could arrive a few minutes early, he can get comfortable there and try it out. Each day he went back and forth about it. In the meantime, I had emailed the teachers who have known both kids since they were babies (due to those mommy and me classes) and they said he could absolutely try it out.

‘J’ has gotten all in on Pokemon cards. There’s one in particular he wants and we decided to put it out there as motivation (a bribe?). If he got through 3 Karate classes, he could get the card. He still continued to debate whether or not he wanted to try.

This brings us to yesterday, the day of the class. We didn’t talk about it too much but it was known that today was the day. The kids played outside in the sprinkler, we had lunch, they showered up and we left early to go to class.

The fact that he didn’t get too nervous prior to getting in the car – a win!

We pulled into the parking lot and he said his belly hurt. I told him to take a deep breath and we were just going to do things one step at a time. We walked in, hung out a bit and the teachers said how excited they were that he was going to try the class. He sipped on his water and went in to play on the equipment for a bit. All classes start this way. Although he had made it as far as open play before, I still considered this a win.

I was a bit nervous knowing that his biggest hurdle would be when they officially started class and went over to the red circle for warm ups. The music turned off and the teachers said “ok come on over everybody!” And off he went.

This. was. huge. He was in the circle, warming up, sharing stories. My eyes were welled up. If he did nothing else today, I was so proud of him for getting this far.

He got through the entire class, no tears, no running away, never saying he couldn’t do it. He followed the instructor’s moves, went through the mini workouts and had fun doing it. His first trip out to me for a sip of water he pulled down his mask and said “Am I doing good?” I told him he was doing awesome and his eyes started to well-I told him to take a deep breath, he had this and he ran back in. At the end class, he asked for a uniform and his white belt.

When we got home, I talked to him one on one and asked if he was proud of himself. He said he was and that he had fun. I told him I was too.

This was the first time that we walked into a building and he never had hesitation from that point on. There were no tears, there was no struggle and in the end he was proud of himself.

Was it knowing his sister and best friends were in the class? Was it because this was a class he really wanted to do? Was it the bribe of a Pokemon card? Maybe it was coming off a Disney trip where he went on three big rides and had more confidence? I think a combination of all of the above.

I’m holding back tears writing this because of how monumental it is. I know other parents who have kids with daily struggles understand it. Small wins are wins. Big wins are mind blowing.

Oh, and he’s going back for gymnastics today!

Disney’s Disability Access Service Card

On By justmymomsenseIn Travel1 Comment

Back in 2018, I wrote about visiting Disney World with Sensory Processing difficulties. If you’d like to check out that blog, click here.

We just recently returned from a trip to Walt Disney World. As mentioned in that June 2018 blog, I knew that the Disability Access Service Card existed. For this trip, we decided we would play out how ‘J’ would do in the parks, knowing that this was an option.

Looking back, I’m wishing we did it from Day 1.

The first two days of our trip, we tried to wait on lines that were not too long, take our time moving around the park and getting in breaks during the afternoon. However, even on lines that we didn’t feel were too long (15-20 minutes), ‘J’ felt otherwise. He was extremely overwhelmed waiting on line, in a crowd and felt it would take much longer than we were telling him.

If you’re a parent with a child that does not have sensory processing difficulties, you may be thinking: ‘ok but no kid wants to wait on a line in Orlando summer heat.’ And you’re right! And I don’t like it either. But for ‘J’ it’s different and his reactions to it are different. Just like any other day to day activities that may appear easy for us, they’re not always easy for him. This goes under that same umbrella.

So what is the Disability Access Service (DAS) Card? According to the Disney Parks Blog:

The DAS Card is designed to accommodate guests who aren’t able to wait in a conventional queue environment due to a disability (including non-apparent disabilities). DAS will be issued at Guest Relations main entrance locations and will offer guests a return time for attractions based on the current wait time. As soon as the Guest finishes one attraction, they can receive a return time for another. This service can be used in addition to Disney’s FASTPASS Service and Disney FastPass+ service.

On the third day of our trip, we headed to Hollywood Studios and went straight to Guest Relations. I explained that ‘J’ had sensory processing disorder and found the lines to be…and then the Cast Member finished my sentence with: overwhelming? She took us over to the side and set us up with a DAS from her handheld device. We were told that we would need to go to a specific attraction to get a return time and that the pass would be good for the entire trip. We wouldn’t need to go to guest relations each day to have it set up again.

This pass was a game changer! I could see a weight lifted off of ‘J’ as we went to different rides. He was calmer, less stressed and more excited. Isn’t that how it should be at Disney?

I’m so thankful to Disney for accommodating all of their guests and for their amazing service helping us to obtain our DAS.

If you’d like to learn more, visit the Disney Parks Blog or reach out to Disney Guest Relations!

School May Not Look Like You Imagined: Part 3

On By justmymomsenseIn school1 Comment

Taking the School Bus

Back in my day, there were walkers and bussers. Walkers were the kids who lived too close to the school and didn’t qualify for bus services. Bussers, well that one is obvious. I was a walker.

When registering ‘J’ for school, we had to sign forms for him to take the bus and were told we would receive a bus pass prior to school starting. I asked if I was able to drive him myself or if he was required to take the bus. The woman was taken aback by the question and said of course I could take him but that every child had the ability to take the bus.

I knew ‘J’ would never go for it.

We did try though. We talked to him about it and asked if he wanted to try. It was a big no. At the time, his sister was 2 and stated “I’m gonna take the bus when I go to school!”

We figured we would start the school year with me bringing him, and maybe once he saw friends taking the bus, he would want to as well. One day he finally agreed to take it home from school. This was huge!

I received a message from his teacher saying that he started to cry once he realized it was time to line up and walk out to the bus. She let me know his friends consoled him and all chanted his name. This made my heart melt. Once they got outside, the Principal and Vice Principal were also cheering him on. He went onto the bus in tears.

My biggest fear was that he’d try to run. When faced with fight or flight, he typically choose flight. We had prepped him leading up to it; we would meet him at the bus stop and he should not to get off the bus until he saw us. But we were still a bit nervous.

My husband, J’s sister and I all went to the corner to wait for him. We were talking to a neighbor when we heard honking, we look over and the bus had pulled up right in front of the house. We ran over and he walked off the bus in a pile of tears and sniffles. He did it! He rode the bus! Something he was so nervous about but he made it through.

He made it clear he never wanted to do it again.

The only other time he has taken the bus since that day was for his only field trip. They went to see a stage show of Frosty the Snowman. He sat next to his teacher and did great. I think being with his whole class, having the comfort of his teacher there and knowing I was picking him up once he returned to school helped to make that bus ride a whole lot easier.

Truth be told, having never taken a school bus myself (except for field trips), I was totally fine with the idea of picking him up and dropping him off. I just want him to always know the option is there for more independence. If he changes his mind one day and wants to ride the bus with his friends, we will support it. If not, that’s ok too.

In the final part of this series, I will discuss our experience with school closing due to Covid.

School May Not Look Like You Imagined: Part 2

On By justmymomsenseIn school1 Comment

Holiday Assemblies

I hate attention. I say this as someone who co-hosts two podcasts and does YouTube Lives. Guess you could say I’m a bit of an introvert/extrovert. When I was in school, I never liked public speaking, performing in a play, answering questions just in case I was wrong even when I knew I was right, etc. I was way too nervous. A little shy. Was there more to it than that? The early stages of my own anxiety? Probably.

I mentioned in the previous blog how much ‘J’ loved Kindergarten and that is 100% true. HOWever, once he started practicing for his Holiday Assembly, things started to shift. Especially when he went into the auditorium for rehearsals. The size of the stage, the bright lights, the echo, he was not feeling any of it. He didn’t want to sing the songs he had been singing all month long in and out of school. He didn’t want to be up on stage in front of everyone, he wanted nothing to do with it.

On the day of the performance, it was an extra hard drop off. His teacher was amazing and in the days leading up to it, she told him that he could stay with her until he was comfortable to go up on stage. Since this was December, 2019, we were able to go to the school to watch. There would also be a gingerbread house decorating activity after the performance for families.

The three of us walked into school to sign in for the show. I looked down the hall to ‘J’s” classroom, his teacher made eye contact with us and waived us down. I knew things weren’t good. We walked down to the end of the hallway to his classroom and saw him behind a desk, eating a graham cracker with puffy eyes. His friends were around him, checking in on him and telling him everything would be ok. He looked up to see us and ran right into my arms crying. All four of us went to the auditorium together and took our seats, right in front of the stage, behind his teacher.

His class walked in and took their spots on stage. We asked him if he wanted to go up with them and he said no. His teacher asked if he wanted to sit next to her and he said no. He stayed on my lap the whole time, watching his friends sing the songs he grew to love.

The thing about ‘J’ is, when he gets himself worked up to the point of not participating in something, he never feels like he’s missing out. He feels relieved, happy and content. He was happy to be watching his friends and cheered them on. Afterwards, we were all at one long table, building gingerbread houses together and all his anxiety was lifted. He returned to the happy boy he is, laughing with his friends.

Our heart breaks watching him struggle with new situations. His anxiety spikes, he wants to run away, he cries. As parents, we want the best for him and for him to be able to branch out and try new things. At the same time, he knows what he likes and what makes him comfortable. Sometimes he does need that nudge, like going into school. But other times, if something is overwhelming him to the point of tears, is it worth the push? We’ve seen the outcome of that and it’s typically not good.

Seeing your child on stage for the first time may be something you’ve thought about with excitement. And it may turn out exactly how you imagined. But there is that chance that it just may not go according to plan.

In Part 3, I’ll chat about taking the Bus.

Magical Mommy Monday Meets Sensory Spectacle

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If you’ve checked out my previous blogs, then you saw a series written by Becky Lyddon, founder of Sensory Spectacle.

Fun fact: I host two podcasts! One is Theme Park Thursday with Dillo’s Diz, with my brother, where we focus on Disney nostalgia. The other is Magical Mommy Monday with my friend, Angela Dahlgren.

Ok, now that the cheap plugs are done, we can move on.

Becky was kind enough to take time out of quarantine to chat with us on the Magical Mommy Monday Podcast. Along with her amazing YouTube videos and her website containing trainings, she also has a podcast as well.

Click here to check out episode with Becky to learn more about her background, sensory processing and Sensory Spectacle!

You can visit Becky’s one stop shop for Sensory Spectacle here: https://www.sensoryspectacle.co.uk/

A Sensory Evaluation: Take 2

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During his Kindergarten year, ‘J’ received Occupational Therapy at school. His Occupational Therapist (OT) was awesome and we stayed in contact to keep each other in the loop. However, occupational therapy in school typically focuses more on fine motor skills (ie: handwriting) and whether or not the student cannot focus in class. ‘J’ was doing great in both of these areas. Unfortunately, the school could not provide more assistance when it came to sensory difficulties. They did not have the space or types of therapies to assist students in this way. It was recommended that ‘J’ would not receive OT for 1st grade.

Knowing that ‘J’ struggled with lighting, sounds and still had separation anxiety during morning drop off, we had him evaluated by an outside OT. He was evaluated at the end of February, 2020 in the areas of Touch Processing, Visual, Oral, Movement and Motor. Without going into specific details, he received scores under the categories of “More Than Others” or “Much More Than Others.”

It was recommended that ‘J’ receive occupational therapy for help reduce sensory sensitivity in the area of auditory, touch processing, visual, oral and sensory seeking behaviors. There would be focus on strategies to help reduce anxiety in social settings, to make him become more comfortable with challenges and to adapt to given situations within his life.

We were able to have two sessions with his new occupational therapist before everything shut down due to Covid. In the meantime, I came up with a Sensory Diet (pictured below), bought some fidget toys to assist with the sensory bin and luckily it was spring which meant lots of opportunity for outside play.

Like everyone else, we had to adjust our daily life. Although we were looking forward to have ‘J’ get started with occupational therapy to focus on his challenges, we did the best we could without it.

A Paw Pa-rrific Halloween

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Over the last 6 months, J has gone through different phases of characters he’s into. WeIMG_3764.jpg were way into Spiderman (he kind of still is), Sid the Science Kid, Super Wings and Paw Patrol. I wanted to wait on buying a costume this year until I knew one of them was sticking. Paw Patrol was the winner and tomorrow J will be dressing up as Marshall.

This time last year, more red flags of a possible sensory issue were coming to light. One of them was how bothered J was by his Woody costume. He seemed so uncomfortable with the feel of the costume and absolutely hated the sound of the velcro on the back of his neck. Every time he moved he would beg me to cut the tag out. I would assure him I already had and this was velcro which helped the costume stayed on.

When we got home from the store a couple of weeks ago and tried on his Marshall costume, I saw him immediately cringe. We cut any tags out and I reminded him of the velcro. He’s not a fan but pushes through in order to wear it. We’ve worn it twice so far for other Halloween activities this month and there’s been a meltdown associated each time. Normally because he does not want to wear the costume in his car seat. He is visibly overwhelmed. Talking it through with him, taking some deep breaths and giving it some time usually does the trick. He tugs at it here and there but overall accepts the costume since he so badly wants to wear it.

Most people around him wouldn’t notice it, unless they witness the major meltdown. But there are looks he gives me when he’s uncomfortable and looking for reassurance. There are various situations where I’ve seen that look and Halloween season is just one instance. Overall, he loves pumpkins, Halloween decorations and the idea of dressing up. He’s looking forward to his Halloween parade at school tomorrow and Trick-or-Treating in our town.

For those with sensory difficulties, so much is going on behind the scenes in order to get through different situations and daily activities.

Another Hairy Situation

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Back in April I wrote about how much J did not enjoy getting his hair wet or having it cut. Here we are in October and not too much has changed.Bath time has gotten easier, although he still has his moments. We still can’t wet a brush or comb when styling his hair.

Before school started, I took him to get a haircut. We made multiple attempts in multiple locations and none of them ended well. He was crying, screaming and trying to run away. It got to the point of his hair being in his eyes that we knew we had to try a different route before school started. My husband took on the duty of adding stylist to his resume. It was a struggle and took over an hour, but ultimately J had his hair in a much better state than he started with.

Hair grows fast. This weekend we found ourselves once again in the position of needing to take J to get his hair cut. We figured we’d skip the struggle of getting it done somewhere and just have my husband do it again. Needless to say, it didn’t go well (not horrible but could be better) and we will definitely be going back to the professionals for next time.

Click here to read “A Hair Situation,” which I posted back in April. I also included 3 videos from Sensory Spectacle in the post discussing why those with SPD find washing, brushing and cutting hair difficult.

Since we’re discussing hair cuts again, I have included that video below. What may not be fun for some kids is heightened for those with sensory difficulties. 

World OT Day

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I couldn’t let today go by without acknowledging World Occupational Therapy (OT) Day.

I’m so thankful for J’s Occupational Therapist. She has taught us so much, made J feel comfortable during his sessions and is always available to answer our questions. Although a complex profession and not centered around one specific niche, Occupational Therapists work to promote independence for their clients. Whether they’re working with children or adults, they work to help them grow socially, physically and emotionally.

For us, it seems appropriate to celebrate OT during Sensory Processing Awareness Month. OT helps J navigate through daily activities easier while providing us with a better understanding on how we can help him succeed.

The Potty Chronicles Continue

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Since I have written about my goals of potty training ‘J’ over the summer and how those plans were unsuccessful, I thought I would provide an update. To some, it may seem weird to be writing about this. But for me, this is a major milestone in this house!

Many attempts were made over the summer, as well as on and off for the last two years. Over the summer we’d take a couple of days where ‘J’ would hold it, and go while he was sleeping since I still had a pull-up on him. Other times he would feel like he had to go and become so overwhelmed and hysterical it was hard to continue because I didn’t want it to be a bad experience. You definitely don’t want your kid traumatized when it comes to bathroom habits. You also don’t want them going to High School in a diaper.

We went through lots of ups and downs and then two days before his first day of school, a Tuesday, he finally did it! It was so exciting and I think he got to see that it wasn’t so bad. Granted, the whole next day he refused. Thursday was his first day of school. Considering he had only gone once, I definitely wasn’t sending him in underwear. I didn’t need him freaking out about that on top of first day of school jitters. Once I picked him up and as we were driving home, I told him that after his nap we were going to try the potty again. That was 5 days ago. He’s now gone 4 nights and 4 full days without wearing a diaper.

It definitely helps that we had no weekend plans and no services or school today and tomorrow in observance of holidays.

It’s hard not to be too excited so I’m trying to stay cautiously optimistic. We’ve put a sticker chart into play which he’s excited about, he hasn’t asked for a diaper and he’s… um…done #1 annnnnnd #2. I’m still in disbelief.

Over the last two years I’ve tried everything. No pants, just underwear, standing, sitting, sticker charts, rewards, no rewards, peer pressure, trying to talk out his fears, reading books, watching potty episodes of his favorite shows, the list goes on.

What we’re experiencing now has never happened. Even over the years when he would go, it would be random, one and done and not again for months.

I’m not sure what clicked for him even thought I always knew it would just click at some point. But when you’ve been changing diapers for 4 years and 3 months for 1 child, you start to doubt it. I think the combination of him realizing it wasn’t so bad once he did it, then going to school two days later and seeing that all the kids were using the potty may have pushed him into gear. Whatever it is, I’m happy and so proud of him. Seeing the fear, the hysterics and knowing how overwhelmed he would get, I’m keeping my fingers crossed that it’s hopefully behind us.