Tag: Sensory Processing Disorder

Supporting a Sensory Lifestyle for People with SPD | Part 1 of 3

On By justmymomsenseIn Uncategorized2 Comments

I started this blog because of the information and solace I found in other blogs, articles and social media groups. I thought that maybe if by sharing my experience, it might be helpful for another parent going through similar situations. 

Thanks to social media, I came across other fantastic resources. One of those resources was Sensory Spectacle. I started following them on Twitter and watching their YouTube videos. I had reached out to Sensory Spectacle, which is based in the UK, to let them know how much I appreciate their videos and that I would love to link to some of them in my blog. To my surprise, Becky, the founder, offered to write a piece for my blog. I am turning her piece into a 3 part weekend series that begins today!

Thank you to Becky and all those at Sensory Spectacle for sharing this information and all that you do for the SPD community. 

And now, here’s Becky Lyddon, founder of Sensory Spectacle. 

I never quite realized how much I relied on my senses until I started a role as a playworker in London in 2009. After graduating from a degree in Graphic Design I realized an office based job just wasn’t’ for me. So I started a job supporting children and young people in a shortbreaks setting (afterschool, holidays and weekends). I got to do loads of fun activities and go on many holidays taking the children to places they had never been before offering new experiences for them and respite for families.

Being in a management role, as well as supporting the children I also had a responsibility to ensure my staff were confident and competent in caring for the young people in all settings we went to.

Very quickly after being in this role I realized that we didn’t offer any training to help them understand why some children may respond in a particular way to their surroundings. I wanted to make sure we could understand and care for the children as best we could. Often it was hard for staff to recognize triggers or understand why a child may love constantly flickering water, for example. Alongside this we also had many experiences where the public would ask us why a child played in a certain way or even if we could stop a child from doing something in particular.

I wanted to create a better understanding and awareness of Sensory Processing Difficulties (SPD) so I went and studied a Masters in Art & Science, it was here that Sensory Spectacle began making immersive learning environments for everyone to gain a unique insight from and to spread a better understanding and awareness of SPD. Our work is created based on descriptions from people with SPD.

Have you ever wondered how it might feel to hear all of the sounds in your environment right now while you are trying to read this post? The lights buzzing, technology whirring, radiators creaking, wind blowing, leaves rustling, airplanes flying, cars driving, footsteps moving, clocks ticking, conversations next door.

We all process and respond to our surroundings in a personalized way. Sensory processing is something which we all have in common as human beings. From before we are born we are sensing, processing and responding to information received from our senses. Because sensory processing is a personalized system unique to ourselves it is likely that you will have similarities in sensory preferences with your friends and family members as well as differences. Food choices, music preferences, sports activities etc. All of these activities revolve back to sensory processing and we build up these preferences throughout our life.

However for some people, organizing and responding to the sensory messages can be extremely confusing. Some children may cover their ears as they can be overwhelmed with the sounds around them. Or maybe you know someone who only has a diet of dry crunchy foods to help block out the sounds around them.

Sensory Processing Disorder (SPD) is when the brain finds it difficult to organize the messages it’s receiving and respond to them. Some people may respond to these sensations actively or passively. SPD impacts 1 in 20 and we must remember that this is throughout someone’s life so children and adults will experience difficulties processing sensory information. As children with SPD get older they are likely to find ways in which they support their own sensory needs in order to help regulate
their bodies.

We must try to understand what these sensory responses and characteristics mean so that then we can support personal needs. You can learn loads more about this in our workshops.

Stay tuned tomorrow for Part 2 of Becky’s piece on Sensory Processing and don’t forget to check out Sensory Spectacle at http://www.sensoryspectacle.co.uk/!
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Squishy Fidgets

On By justmymomsenseIn UncategorizedLeave a comment

We’ve all heard of fidget spinners. It went from being a helpful aid for those with sensory disorders, autism and ADHD, to a hot holiday item that everyone wanted.

I never thought much of it, but in recent months I started to wonder if a fidget would be good for ‘J.’ I wasn’t sure where to start and didn’t feel like a spinner was the right answer for him.

I did some research here and there but never moved forward with the idea. About two weeks ago, ‘J’ started watching TV, reading books, etc. and I noticed his hands would be in his mouth pretty often. This was new and something I was keeping an eye on. I also noticed as he was playing play dough or some other toys he would be testing how it felt on his face. I wasn’t sure if he was requiring more sensory input or if something was bothering him. After talking with him and watching him more, I felt like at times he just needed to do something with his hands. I mentioned it to his Occupational Therapist on Monday and she suggested a fidget. During his session, she gave him a squishy fidget to play with. His hands never went in his mouth and he was excited to play with it. She said img_2017it’s something we could try and told me I could find them on Amazon. Easy enough! Amazon and I have a great relationship.

Right after OT, he has speech. I mentioned it to his speech therapist and she had a smaller fidget with her. She gave it to him to play with and mentioned it might help keep him still. Sometimes he gets…for lack of a better word…fidgety during his session. She also let him know that anytime he wants it, all he has to do is ask.

Now we our very own squishy fidget dinosaur (pictured here as he roars) and a few others to try out. I’m hoping this can be used for calming purposes when needed, gives him the sensory input he sometimes requires and of course for fun!

Click here to purchase the same squishy fidget toy for your family! 

What is Sensory Processing Disorder?

On By justmymomsenseIn Uncategorized3 Comments

A question I get asked a lot! Not an easy one to answer since it’s different for everyone.

The STAR Institute for Sensory Processing Disorder is a great resource. Here is their umbrella definition:

“Sensory processing (originally called “sensory integration dysfunction” or SID) refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Sensory Processing Disorder (SPD), exists when sensory signals are either not detected or don’t get organized into appropriate responses. Pioneering occupational therapist, educational psychologist, and neuroscientist A. Jean Ayres, PhD, likened SPD to a neurological “traffic jam” that prevents certain parts of the brain from receiving the information needed to interpret sensory information correctly. A person with SPD finds it difficult to process and act upon information received through the senses, which creates challenges in performing countless everyday tasks.”

They also mention that “symptoms of Sensory Processing Disorder, like those of most disorders, occur within a broad spectrum of severity.”

That last line goes back to what I mentioned in the beginning. Due to that broad spectrum, this can be different for everyone. It’s helpful that I started reading “The Out-Of-Sync Child.” There are many sub-categories of Sensory Processing Disorder that the book gets into. Within those sub-categories there are descriptions as to how a child may react if they are considered overresponsive, underresponsive or sensory-craving. Children can fit into one of these boxes or maybe a variety within the subcategories  As I continue to read “The Out-of-Sync Child,” I’ll be sure to share what I learn and how my personal experience relates to that information.

I can’t even fully explain what exactly it is for ‘J.’ I can say he seems to relate to that of a sensory-craving child but there are definitely moments where he is overresponsive. I’m understanding more about him as I read and learn. I know what triggers him and what doesn’t. I’m also still surprised by what does and doesn’t trigger him. I don’t think I’ll ever stop learning or have a full grasp on it, but it will become more clear one as time goes on. I look forward to having more tools to help him through his sensory meltdowns so they don’t ruin a portion of or sometimes his whole day. I look forward to being able to better help him handle situations that give him anxiety. None of us like experiencing the unexpected. It’s scary, unnerving and stressful. For ‘J’ it’s that times a thousand. We do a lot of prep during the day. We discuss what we’re going to do, who we’re going to see and as any changes arise, we talk those through as well. Once we work with our Occupational Therapist and do the homework I’m certain we’ll have, I know he will be able to organize his thoughts and feelings so much better.

I mean he’s super smart…yeah I know every parent says that…but seriously…he’s insanely smart. Which could be an additional factor as to what’s going on. But that’s a blog for another time.

Links to a Few Resources

The Out-of-Sync Child by Carol Stock Kranowitz

STAR Institute

What Is Sensory Processing Disorder? A video posted by MichaelGrass House on YouTube

When Kids Don’t Act Like They’re Supposed To (Understanding Sensory Processing In Kids) A video posted by Your Kid’s Table on YouTube

 

When is it Empathy and When is it Sensory?

On By justmymomsenseIn Uncategorized5 Comments

This is a question I asked our speech therapist in the Spring of 2017. My daughter was a few months old at the time and if we were in the car when she started to cry, my son, ‘J’ would cry and tell me to help her. When he first did this, I thought it was endearing and a little heartbreaking as well. Although I don’t doubt that those things actually exist, I started to realize it might be more than that. I questioned it more when we were with my niece and if she would cry, ‘J’ would request to “go home” or “go to his room” so he could calm down. I questioned it when we were out to eat with his friend after a playdate and his friend cried because he wanted a toy car. ‘J’ once again would start to cry and ask to leave. One night while laying with him as he fell asleep, I started googling (always an interesting activity) and realized this might be more than just empathy.

As time went on, I noticed how often he seemed overwhelmed in various situations. I also gave it some time to see if it was a phase he had to grow out of. It wasn’t.

He was Woody from Toy Story for Halloween and the back of the costume had velcro. This was the first time he ever seemed bothered by clothing. From then on, he asks for tags to be cut out of his clothes. We visited a drive -thru Christmas light experience, which we thought he would love! As soon as we arrived, he took one look at the large guitar playing lit up snowman and lost it. It was the saddest thing I’ve ever seen. I felt like I was watching him experience a real life nightmare.

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I started reading more into Sensory Processing and my gut said to seek out an evaluation. With the upcoming holidays and a Disney trip on the horizon, I wanted to make this happen sooner rather than later. Luckily I was able to get the evaluation done before the New Year and before our trip. I started to make notes for the evaluator regarding my concerns and when I was done I had over two pages. I was surprised, but once I thought back to things in the past I had brushed off and the recent months of new experiences we had, there were more than a few red flags.

This week we were approved for Occupational Therapy (OT) twice a week. I’m so happy and can’t wait to start! Seeing how much he’s grown and progressed with speech, I knowbeing in OT and doing exercises at home will help him better process his surroundings.

In recent weeks I’ve done even more research, joined Facebook SPD Parent groups and just started reading ‘The Out of Sync Child’ that I ordered on Amazon. Knowledge is power, right?

Click here to check out a video posted on YouTube explaining Sensory Processing Disorder. The video was posted by MichaelGrass House.