Jump Around!

What is the Vestibular Sense?

The vestibular system contributes to balance and orientation in space. It is the leading system informing us about movement and position of head relative to gravity. – SensoryHealth.org

There are times ‘J’ will jump on his bed at the end of the day. My immediate go-to is to stop him and explain how it’s time to get ready to sleep, not to play. But what he’s doing is bigger than playing. He’s giving his body what he needs in order to get to a more restful state. Yes, I know this seems like a contradiction, but trust me, it’s true.

I’ve been lucky enough to chat with Becky Lyddon from Sensory Spectacle on a few occasions and she is so awesome at explaining sensory life. I have mentioned her in previous blogs and I’ll be sure to link those below. For now, let’s listen to Becky explain the benefits of bouncing on a bed.

We have a trampoline in our backyard and ‘J’ could jump on it for hours. Over the years we have offered time on the trampoline when we can tell that it may be helpful in certain moments. Of course this is aside from just random playtimes when he’s bouncing as well.

I often have to remind myself that jumping on the bed is often exactly what ‘J’ needs and not something he’s doing strictly for the fun of it.

To learn more about the Vestibular Sense and your other 7 senses (yes there are 8), click here.

Previous Blogs Featuring Becky Lyddon:

A Hairy Situation

It’s Too Loud

Sensory Spectacle Resources

Magical Mommy Monday Episode

The Way I Parent

Fun fact: I didn’t have imaginary friends when I was little, but I did have imaginary children. I have wanted kids for as long as I can remember. Did I have them at the exact age I thought I would? Nope. Did I have as many as I sometimes thought I might? Nope. Life takes twists and turns and leads you to where you’re supposed to be. I’m lucky enough to have hit the jackpot with two awesome kids.

I don’t know that I ever envisioned too much about parenthood outside of – yup, definitely want that! I didn’t really know what kind of parent I wanted to be, couldn’t picture being the parent of school age kids and now that I am, I have a hard time imagining who I’ll be as the parent of high schoolers <cue anxiety>.

I used to love knowing what was going to happen and liked having a plan. I’m not sure when that lessened, but it definitely did over time. And I’m glad it did. For me, it was a more stressful way of living. I think the fact that I was able to let go of some of that, helped open me up to letting my kids show me the way when it comes to parenting.

That sounds weird, even as I type it, since I’m basically just thinking out loud in this blog and wasn’t sure how to phrase that. And don’t mistake what I’m saying, my kids do not run the show. But I do think that growing up in the 80s and 90s, our parents as a society were much different than (most) parents today. We didn’t have much of a choice in…anything, our parents definitely didn’t do as many activities with us, etc.

Please note: I have great parents and had a great childhood. But was it perfect? Of course not. Each generation just tries to move the needle and improve the one before.

Having a child that didn’t talk for two and a half years, with sensory processing difficulties helps tune you in to what they’re needing on a bigger level. I’ve realized how many people expect so much from kids in general. They should behave perfectly in every situation. They should be up to date on social cues, say things even if they don’t mean it, the list goes on and on. Kids are people, just smaller ones. They have thoughts and opinions, likes and dislikes, they have big feelings and should feel seen and heard. There are so many things that kids still have to do that they won’t like. For example, they’re not going to be excited about going to the doctor, the dentist, some days they may not be into school (hopefully they don’t hate it), homework, etc. But those things have to be done. If there is something either of my kids don’t have to do, don’t want to do or feel uncomfortable about, I’m not going to make them. I choose my battles and hear them out. Are there times they come from a place of no when I know they’d love to do a certain activity or go some place but they just may be fearing the unknown? Of course, and that’s where the balance to everything I’m saying comes in.

We all know our children best. We should always make sure they feel safe, feel seen, feel heard, feel respected and can express any opinion or emotion to us without fear of repercussion. They are still figuring out the world and hopefully will always be on that journey. We should be there to help guide them. I don’t know about you, but I’m still definitely on it. I’m not a perfect parent and never will be. I do try my best and some days are better than others. On the days I felt like I could’ve done better, I make sure to check in with myself, try not to spiral so that I can get up the next morning and try again.

Again, I’m not sure if I ever envisioned the type of parent I would be, but I think having a sensory kid definitely made me more aware of both of my kids as humans and working to keep their emotions, my emotions, our surroundings all in balance. If we’re not regulated, they’re not regulated.

I’ve learned more about myself in these last 8 years of parenting than any other time in my life. I look forward to learning more.

Anticipation

When I started this blog, I came up with the title “Just My MomSense” because I’m a big believer in trusting your gut.

No one knows your child better than you. This kicks in as soon as they enter the world. You start learning which cries mean hungry or indicate they’re in pain. You start to know by the looks on their face if they’re sick and as they get bigger, you can tell by a look on their face if something bigger is going on.

As a third grader, we have to trust our gut in new ways with ‘J.’ He’s always been big on keeping things bottled up but those feelings end up coming out in different ways. We don’t want this to be a norm for him and try our best to give him the tools he needs to express how he’s feeling. For example, we know there have been times things happen at school but he didn’t say anything because he wasn’t sure who to tell or when or didn’t want to interrupt the schedule of the day. We continue to let him know how important it is to speak up and to let someone know how he’s feeling because no one can help him if they don’t know what’s going on.

We’re all about the tools in this house and always have been. For us, therapies have been helpful because they give him more tools for his toolbox to get through his day. I’ve talked before about how things that so many people take for granted throughout their day are tougher for him, so the more tools to help, the better.

One of our tools, as parents, is anticipation. Maybe that isn’t the best word, maybe preparation is better…probably both. We do are best to anticipate and prep him and his sister for upcoming activities. We show pictures, videos when possible, or just explain an itinerary in detail. This helps to avoid fear of the unknown and soften any anxiety that could arise. We also try our best to anticipate how they’re doing in any situation. We can see a look on their face and know they’re uncomfortable or tired or starting to get anxious. When that happens we can pull them to the side or distract them or we can also leave the situation we’re in. It all depends.

Are we perfect at preparation and anticipation? Nope. Do we screw up sometimes and then have to think about why they’re acting a certain way? Yup, plenty. But we try our best and as parents, that’s all we can do.

Having a child with a speech delay and sensory processing difficulties has changed the way we parent both of our kids, more on that in the next blog!

Being Nostalgic About Your Kids Being Young

While They’re Still Young

When my kids were babies, I hated switching out their clothes every few months. It made me so sad to think about how quickly the time was going and how fast they were growing. While also knowing it was awesome that they were thriving.

“The days are long but the years are short.”

“Time flies.”

“Enjoy it now because it goes by quick.”

“They grow up so fast.”

“Don’t blink or you may miss it.”

It’s true. All of it!

Nothing has flown by faster than these last seven and a half years I’ve spent as a mom. I have found myself becoming more and more nostalgic…and anxiety ridden….for the days when they were babies.

The toddler clothes section of Target? Yup, I’ve gotten choked up there. My daughter is in 5T clothes, soon she’ll join her brother on the other side of the aisle.

Seeing people on walks with their babies in strollers? How did that go by so quick? No one talks about how quick kids grow out of strollers, especially for leisurely walking.

The TimeHop app on my phone constantly reminding me of adorable moments on a random Tuesday? I love it and hate it all at the same time.

I’m a nostalgic person to my core. I’m all about throwback photos, remembering things from my childhood, missing certain things about Disney in the 90’s, music and more. But I wasn’t expecting to feel so nostalgic only 7 years into motherhood. I find it hitting me more and more randomly as the days go on.

All I want is for my babies to continue to grow and thrive. I want to them to be independent and enjoy life to the absolute fullest. I know this is a trade off because it also means them pulling away from me more as the years go on. And as hard as it’ll be, it’s ok. It’s what’s meant to happen. I want them to find their happy places, surround themselves with good people and be living life on their terms. I hope they create their own dreams and see them all come true.

But what I wouldn’t give for buying some baby clothes from that side of the aisle at Target for one more day.

Hitting the Reset Button

It’s so easy to get caught up in the craziness of day to day life. I feel like most have returned to making plans, seeing friends and family and being generally “busy.” As adults, we often find ourselves having to hit the reset button. Sometimes we realize we need to get more sleep, eat healthier, exercise more or set new goals. As parents, it’s important to know when we need a parenting reset or our kids need their own reset.

Sensory Processing difficulties can play tricks on you as a parent. You may think you’ve found your groove or have a good routine going. Maybe your kids have grown more and they’re able to express their feelings in a better way. You may even find they’re having more good days than difficult. But kids are little people that are evolving, changing and constantly trying to figure out the world. When we’re in a routine with school, activities and playdates, it’s easy to put that fact on the back burner. We’re just doing instead of making conscious efforts.

‘J’ is seven and a half and in second grade. He’s doing awesome in school. He loves his friends and teacher (and doing extra homework). He was fully virtual last year but did great adjusting back to in person learning. Being around new kids and seeing how they interact was a bit tough at first. He witnessed some rougher play, hitting each other, yelling in each other’s faces, all of which is not his personality. It definitely made him uncomfortable but he’s good about knowing right from wrong and over time started to understand varying personalities.

We’re in NY and this winter has been tough. Not too many days where we could be outside and play. This has an effect on him every year. As soon as the weather gets nicer, we’re outside daily and it definitely helps him regulate his body. With the colder temps, snow and rain, it’s not so easy. His mood is affected, his body is affected and eventually a light bulb goes off in my mind that it’s time to hit the reset button.

With ‘J’ getting older, how his SPD affects him has changed as well. He can spot if there’s a tag in his clothing that he wants cut out before he even wears it which is an improvement from a few years ago. If he’s frustrated or not getting his way, he can’t process how his body reacts to that emotion. Some adults aren’t good at dealing with their frustrations and he’s human, of course he’s allowed to be frustrated sometimes.

However, for him, he takes it out on himself. There’s negative self talk, he physically takes out his frustration on himself and as parents, it’s hard to watch. Especially when, prior to 6 months ago, he never did that.

The best thing we can do in these moments is to stay calm and keep ourselves regulated. No problem when your kid is hurting himself right? It’s not always going to be perfect but it has to be the goal or else the problem will just escalate.

For us, hitting the reset button meant taking a step back to make sure he doesn’t do anything dangerous while also not automatically reacting to everything he’s doing. It meant reminding ourselves that we need to stay calm in order for him to get back to that place too.

Bedtime was starting to get to be a struggle and I finally asked ‘J’ what was overwhelming him. He basically said he didn’t like being told what to do with the routine. So we said no problem, here’s everything we do before bed, how about you decide what you want to do first. This has been a game changer. The routine takes a little longer at night but we’re not in a battle anymore and that’s a huge win.

We also started incorporating sensory activities into our day again. This is one of those things that we can let slip when we’re so caught up in the day to day routine. Were we doing sensory activities some days? Yes. But not enough with conscious efforts behind it. We’re now having both kids choose what they want to do in the morning and in the afternoon on a chart. We have play-doh, beads, exercises, sensory swing time, reading a book in a rocking chair and others on the list. Some days we’ve brought their bicycles inside, put the training wheels in our shoes and let them pedal away to release some energy. They love this activity! They’ve used their imaginations to say where they’re going, what kind of adventures they’re encountering and who they may see along the way.

Going back to basics and remembering how important a sensory diet is (in whatever way you can fit it into your day), has helped mitigate some of those frustrating times. Of course they still happen and we will continue to work on different ways to get through those moments. Nothing will change overnight. It’s all about us as adults and our kids continuing to evolve, understanding emotions and figuring out ways to handle them.

CDC and AAP Milestone Update

I’m going to be honest. I’ve been writing a few blogs that I was planning on releasing, with a set schedule in mind in order to get back into the blogging game. However, this week the CDC and AAP released an update to their milestone guidelines and I thought, how could I not discuss this current news item?

If you’re new here, please know that I am just a mom and my opinions are coming strictly from that perspective. My son had an expressive speech delay and didn’t talk until two and a half. You can read more about that here. At three, we had him evaluated by an Occupational Therapist for Sensory Processing Disorder. I discussed that in another previous blog: ‘When Is It Empathy and When is it Sensory?’ All this to reiterate that I’m speaking strictly as a mom that has dealt with delays in developmental milestones.

The goal of the CDC and AAP is to help catch developmental delays, as well as Autism, earlier. But as any parent knows, nothing is one size fits all when it comes to kids.

When we were starting to question our son’s speech delay, everyone had an opinion, with the best intentions of course. We heard “oh he’s fine, just give him time” or “so and so didn’t talk until 3, he’s fiiiiine” and of course “he’s perfect, you have nothing to worry about!” As first time parents, our guts were saying one thing but everyone around us was saying another. When he turned 2 in June, his doctor mentioned we could look into having him evaluated or give him a few months to see if it just clicks one day. We gave him two months and decided to go with the evaluation.

On the flip side, our daughter said “Banana” which sounded like “Ah-na-naaaa” as her first word, at 12 months old. From that moment on, she was off and running with talking.

Our son walked at 14 months, where our daughter walked closer to 18 months. Two kids, from the same house, hitting milestones at different times. No one child is the same and they will all develop at different times.

The guidelines are just that and shouldn’t be something that parents feel have to be followed exactly. The updates have certain milestones pushed back, with others pushed ahead. I’m sure doctors, speech therapists, occupational therapists and physical therapists all have their opinions. Here is the one thing I know for sure: trust your gut!

The exact reason I started this blog was to share our experience in hopes of helping others while focusing on that gut feeling. It’s the feeling you have as a parent, because only you know your child best. For me, I refer to it as my “MomSense.” If you are working with a pediatrician that you feel is a good fit for your family, will listen to your concerns and take them seriously, offers advice without being pushy and will care for your child with good bedside manner all while trusting your gut, you and your child will be fine.

You are the number one advocate for your child always. If you feel your child might have a delay, the sooner you have them evaluated, the sooner they have tools in their toolbox to get them through the day to day. Walking, talking, crawling, stacking blocks and so many other things can be easily taken for granted. Family, friends and societal stigmas (which shouldn’t exist but unfortunately do) can sometimes get in the way of what you know to be true.

With these new guidelines, or any others, talk to your doctor and trust your gut. It will not steer you in the wrong direction.

You can read the updates to the Milestone Guidelines, by clicking here.

Themed Learning Week | Day 3

My kids went all in on the Descendants movies during the Spring. I tried to make sure the themed days would be something they both enjoy and I knew this would be a winner.

It was indeed! As soon as they saw the sign, they ran to get changed into Descendants costumes for learning time.

I went outside of my comfort zone a bit by making my own themed worksheets. It was my first go at it, and I’ll share them here and on my Pinterest page for those that may be interested!

They did great with the worksheets and loved having the theme tied into them! We did some Descendants dancing afterwards, because, how could you not?

I’ll be posting about our final day tomorrow!

Themed Learning Week | Day 2

“Climb the mountain, not so the world can see you, but so you can see the world.” – David McCullough

The World was our theme for Day 2 this week!

We kicked off our time by reading an oldie but goodie “I Am Human.” We love adding this book into our rotation from time to time to open the discussion of kindness, how we’re all connected and what we can do to make the world a better place. The conversation led to why it’s good to reduce, reuse and recycle and different types of ways we can help other people.

I found these awesome worksheets from clevelearner.com via Pinterest. They got to review directions of a compass and started to working on reading a map. Would a map discussion be complete if they weren’t able to create their own treasure map?

They decided to complete the treasure map while dressed as pirates. I took apart an old box and planned to have them create a city out of it. They had bigger plans!

Since they were already dressed as pirates and had a treasure map, why not create a whole island? They got to work with crayons, Play-Doh, figures and anything else they could find!

All in all, Day 2 was a success. The best part was watching their imaginations take over and finish off learning time.

There will be a total of 4 days in this series. A cold ran through the house that gave us a mid-week break!

Themed Learning Week | Day 1

In the last few weeks I’ve been squeezing in some learning time during the day. Not too much where they feel like it’s “school” but just enough to get some practice in before school starts. They’ve been doing some workbook pages, iPad learning games and having some solo reading time daily.

This week I decided to change things up by having a theme each day for “Learning Time.” First up: Pixar Day!

Have I mentioned how thankful I am for Pinterest? They get me through any kind of spontaneous teaching/learning I end up doing! I found this ‘Inside Out’ worksheet (courtesy of buildingyourstory.com) and circles (which I laminated and cut out).

I had them write out how the felt, in age appropriate ways. ‘J’ at 7 was able to write out sentences, while his sister at 4, copied which feeling she aligned with and one word that caused her to feel that way. They both picked Joy and considering it was Monday, I thought that was a great way to kick off their week!

I created a game with the circles. I turned them all face down and had them take turns picking one. Whatever circle they picked, they had to describe a time they felt like that character.

Since we were on a social-emotional path, we also read some of our ‘Inside Out’ character books.

Staying on our path, we discussed the Silenzio Bruno scene in ‘Luca.’ We talked through silencing negative thoughts, replacing them with positives and being brave! Then they colored this worksheet!

Next up, I snuck in some age appropriate Math! ‘J’ practiced money with a Toy Story worksheet and his sister worked on a Toy Story puzzle to practice number order. I built on both a bit by changing up the number order for the puzzle and having ‘J’ use pretend money to pay for the items on the worksheet.

We finished things up with a Toy Story matching game!

Day 1 was a success and they were excited to see what was in store for Day 2! Stay tuned for more!

A Karate Win

Yesterday was big! ‘J’ knows it and we know it.

If you’ve read this blog before, you know that ‘J’ has had struggles going into school and going to swim lessons. He got through them both, but it was difficult. Before the pandemic, we had attempted a Ninja Warrior class at the same place we used to take mommy and me classes. I thought he would love it. He loves to run, jump and create obstacle courses, this would be perfect!

It wasn’t.

Although I would be able to watch him during the class, a counter separated us which was too much of a separation for ‘J.’ There are things that we have to force him to do that aren’t easy for him: school, going to the doctor, etc. This wasn’t something he HAD to do, so we didn’t go back.

With some time having passed, we decided to try again this past spring. This time, his sister was also old enough for the class and I thought having each other would help.

It didn’t.

His sister however loved it and we signed her up for Ninja Warrior class, as well as Gymnastics. He came with us to watch her a few times and never felt like he was missing out. A feeling I never want him to have. He was ok with his decision which made us ok with it too. In the meantime, we found a LEGO challenge class online and most recently a virtual drawing class. He was comfortable with this set up, especially after a year of virtual school.

Their two best friends recently decided to try classes at the same location. I mentioned it to ‘J’ and asked if would want to try again, he said no and was still ok not being there. Then his sister, and two friends tried the Karate class. This was something we had offered to him before and something we knew he would like. He came with me as we watched the trial class. As he sat there, he kept saying “I wish I could do that too.” I said “You can! I’m sure they’d even let you try this class if you wanted to.” He said he wouldn’t be able to because he would cry. This was the first class where he felt like he was missing out on something. We talked about it as the week went on. I suggested we email the teachers to see if we could arrive a few minutes early, he can get comfortable there and try it out. Each day he went back and forth about it. In the meantime, I had emailed the teachers who have known both kids since they were babies (due to those mommy and me classes) and they said he could absolutely try it out.

‘J’ has gotten all in on Pokemon cards. There’s one in particular he wants and we decided to put it out there as motivation (a bribe?). If he got through 3 Karate classes, he could get the card. He still continued to debate whether or not he wanted to try.

This brings us to yesterday, the day of the class. We didn’t talk about it too much but it was known that today was the day. The kids played outside in the sprinkler, we had lunch, they showered up and we left early to go to class.

The fact that he didn’t get too nervous prior to getting in the car – a win!

We pulled into the parking lot and he said his belly hurt. I told him to take a deep breath and we were just going to do things one step at a time. We walked in, hung out a bit and the teachers said how excited they were that he was going to try the class. He sipped on his water and went in to play on the equipment for a bit. All classes start this way. Although he had made it as far as open play before, I still considered this a win.

I was a bit nervous knowing that his biggest hurdle would be when they officially started class and went over to the red circle for warm ups. The music turned off and the teachers said “ok come on over everybody!” And off he went.

This. was. huge. He was in the circle, warming up, sharing stories. My eyes were welled up. If he did nothing else today, I was so proud of him for getting this far.

He got through the entire class, no tears, no running away, never saying he couldn’t do it. He followed the instructor’s moves, went through the mini workouts and had fun doing it. His first trip out to me for a sip of water he pulled down his mask and said “Am I doing good?” I told him he was doing awesome and his eyes started to well-I told him to take a deep breath, he had this and he ran back in. At the end class, he asked for a uniform and his white belt.

When we got home, I talked to him one on one and asked if he was proud of himself. He said he was and that he had fun. I told him I was too.

This was the first time that we walked into a building and he never had hesitation from that point on. There were no tears, there was no struggle and in the end he was proud of himself.

Was it knowing his sister and best friends were in the class? Was it because this was a class he really wanted to do? Was it the bribe of a Pokemon card? Maybe it was coming off a Disney trip where he went on three big rides and had more confidence? I think a combination of all of the above.

I’m holding back tears writing this because of how monumental it is. I know other parents who have kids with daily struggles understand it. Small wins are wins. Big wins are mind blowing.

Oh, and he’s going back for gymnastics today!