Today was our first day of Occupational Therapy. I’d call it a success since J is looking forward to going back on Monday!
It was a bit of a bumpy start. We walked into the waiting room, where PJ Masks was playing and I just so happen to have his PJ Masks sippy cup with me. A perfect match! But I digress. Once we turned the corner, he saw a couple of people waiting and froze. He tried to get back out the door and said he wanted to go home. With some coaxing, I got him to sit on my lap and eventually started playing games on my phone to try to shake the nervousness. His therapist came out, introduced herself and asked if he wanted to go back to play. Since it’s his first day, I went back with him. Luckily, once he saw the gym, he was all in. He played with the swing, tunnel, puzzles, putty, magnetic letters (his favorite) and the trampoline. I went over some of my concerns and filled out paperwork.
Today was all about introductions, learning more and most importantly getting J comfortable with his new surroundings. Much like speech therapy, to J, it’s having fun with someone one on one.
I look forward to his progress as time goes on and coming up with new ways to prevent or calm his triggers.
I’ve mentioned before that one of the reasons I started this was because of the other blogs and articles I had read that helped me. Maybe my story might help another parent going through a similar experience!
Facebook groups have also helped. A community of parents asking questions, telling stories and sharing their experiences. There was a discussion one day as to how others react to learning about Sensory Processing. One person shared that her husband initially hadn’t even wanted their child evaluated. Others talked about their parents telling them that they just don’t discipline well enough. The kids get away with too much. Have too much. Some other family members and even doctors just didn’t believe it was a real thing.
Yet those parents that trusted their gut, got their kids the extra help they needed, had a much better quality of life. They were able to predict and most times prevent triggers. They now know what can calm their child. What their mind and body need to properly process information and self regulate in those disorganized situations. That mommy (or daddy) gut will never steer you wrong.
In ‘The Out-of-Sync Child,’ it states that research regarding Sensory Processing has been going on since the 50’s, even though most of us never heard about it. Much of the cause seems to be genetic, but there is still more research being done. I know when I was younger you never heard about this, but you also never heard much about food allergies. With the internet and especially social media, I think there an inundation of information regarding varying issues.
Again, because a child is “out-of-sync” doesn’t mean there is something wrong. It just means they need a little extra help going through the motions of daily activities.
This is a question I asked our speech therapist in the Spring of 2017. My daughter was a few months old at the time and if we were in the car when she started to cry, my son, ‘J’ would cry and tell me to help her. When he first did this, I thought it was endearing and a little heartbreaking as well. Although I don’t doubt that those things actually exist, I started to realize it might be more than that. I questioned it more when we were with my niece and if she would cry, ‘J’ would request to “go home” or “go to his room” so he could calm down. I questioned it when we were out to eat with his friend after a playdate and his friend cried because he wanted a toy car. ‘J’ once again would start to cry and ask to leave. One night while laying with him as he fell asleep, I started googling (always an interesting activity) and realized this might be more than just empathy.
As time went on, I noticed how often he seemed overwhelmed in various situations. I also gave it some time to see if it was a phase he had to grow out of. It wasn’t.
He was Woody from Toy Story for Halloween and the back of the costume had velcro. This was the first time he ever seemed bothered by clothing. From then on, he asks for tags to be cut out of his clothes. We visited a drive -thru Christmas light experience, which we thought he would love! As soon as we arrived, he took one look at the large guitar playing lit up snowman and lost it. It was the saddest thing I’ve ever seen. I felt like I was watching him experience a real life nightmare.
I started reading more into Sensory Processing and my gut said to seek out an evaluation. With the upcoming holidays and a Disney trip on the horizon, I wanted to make this happen sooner rather than later. Luckily I was able to get the evaluation done before the New Year and before our trip. I started to make notes for the evaluator regarding my concerns and when I was done I had over two pages. I was surprised, but once I thought back to things in the past I had brushed off and the recent months of new experiences we had, there were more than a few red flags.
This week we were approved for Occupational Therapy (OT) twice a week. I’m so happy and can’t wait to start! Seeing how much he’s grown and progressed with speech, I knowbeing in OT and doing exercises at home will help him better process his surroundings.
In recent weeks I’ve done even more research, joined Facebook SPD Parent groups and just started reading ‘The Out of Sync Child’ that I ordered on Amazon. Knowledge is power, right?
Click here to check out a video posted on YouTube explaining Sensory Processing Disorder. The video was posted by MichaelGrass House.
Just My MomSense 